Neuro Surveys Listing | CNSF

Your opinion and experience makes a difference.

Please consider taking some time to provide your input on any of the following surveys that would apply to you and your profession.

These surveys are not created or endorsed by the CNSF.  They are posted on behalf of our members and related specialties in an attempt to assist in research.

The Care of Women with Epilepsy (WWE)

The care of Women with Epilepsy (WWE) is complex and especially important during their childbearing years. There is felt to be a heterogeneity in practice across Canada in how neurologists, epilepsy specialists or nurse practitioners approach this patient population.

The Canadian League Against Epilepsy’s WWE committee would like to ask you to fill out this short <5 min questionnaire to get your insight. 

Your answers will help shape our understanding of how care is provided to WWE in Canada.

Please click on the link below for the consent (FR and EN available) and within, the link to the questionnaire.

English https://claegroup.org/WWE-Survey-English/

Francais https://claegroup.org/WWE-Survey-French/

Thank you on behalf of the CLAE

Esther Bui and Tad Fantaneanu

Posted Wednesday, May 6, 2021

Canadian Paediatric Surveillance Program (CPSP) Study on Serious Adverse events related to cannabis used for medical purposes

As with all medications, serious adverse events related to medical cannabis use can occur.  Despite its increasing use, there is little real-world data on adverse events in Canadian children using cannabis products for medical/therapeutic purposes. Information on the risks of health products containing cannabis and cannabinoids, including dose-related risks and drug-cannabis interactions, is critical to ensure that these products can be dispensed without undue harm.

A CPSP study is currently underway to capture information on severe adverse events related to medical cannabis use in children and youth. As a paediatric neurologist who may encounter patients using cannabis products for a variety of medical reasons, we need your help to report all eligible cases to the Canadian Paediatric Surveillance Program CPSP.

Please see all details and survey link:  https://www.cpsp.cps.ca/surveillance/study-etude/serious-adverse-events-related-to-cannabis-used-for-medical-purposes

If you are not a member of the CPSP, and would like to participate in this prospective surveillance study, please contact the CPSP office. The CPSP team would be happy to register you for the duration of this important project.  Please contact:  CPSP@cps.ca to enroll, or to learn more.

Posted Wednesday, May 5, 2021

Tuberous Sclerosis Complex (TSC) Practice Survey

Healthcare providers across Canada are requested to answer this short 5 minute survey related to their care of TSC patients. The aim of this quality improvement survey is to learn more about pediatric TSC models of care delivery in Canada, as well as to identify gaps in care.

The hope is to establish an innovative multidisciplinary network in pediatric TSC care to enhance collaborative educational and research activity across Canada.

Participation in this survey is voluntary and anonymous. None of the responses will be connected to identifying information.

Survey Link: https://forms.gle/qyuYQJZfq6VyKa3JA

If you have any questions or difficulty with this survey please contact Denait Haile at OntarioTsc@gmail.com 

Sincerely, Maryam Nouri, MD, MSc, FRCPC, CSCN (EEG), Robyn Whitney, MD, FRCPC, CSCN (EEG), Maria Zak, NP

Posted Wednesday, May 5, 2021